Sad Update: When a 5 week old baby goes through pacemaker failure...

We posted a few days ago about our daughter fighting for her life in the CVICU. Unfortunately things only got worse Saturday night. Not one, but two of her temporary pacemaker wires fractured in her heart and the pacemaker stopped working.

We got the call at 2 am that she was in a dangerous situation. They unplugged the pacemaker and put her on a medication to increase her heart rate. They were able to bring it from 57 to 80, but all the work was taking a dangerous toll on her heart. We spent hours staring at the monitors making sure her heart wasn't showing signs of failure. By 8 am she was showing signs of toxins entering her blood stream so they rushed her into the operating room and put a new temporary pacemaker in. The surgery lasted 4 hours. It is so hard to watch doctors wheel away your 5 week old.

My wife anxiously checking the monitor after the surgery to see how our daughters numbers look. It has been a long weekend with little sleep. We promised we would keep fellow imgurians updated. So far she seems to be tolerating the new temporary pacemaker well. We just need our preemie to get bigger so she can get a permanent pacemaker and come home with us!

I know mentioning Facebook is frowned upon, but last time people doubted the truth of our story. For those wanting to follow our journey you can find us on Facebook at:

https://www.facebook.com/eleanorroseblaisdell/

or

https://www.gofundme.com/eleanor-rose-nicu-bills