LalaSchoolhouse
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After college, he was planning on teaching in Korea when he was diagnosed with Hodgkin’s Lymphoma.
He beat Hodgkins Lymphoma, and has since been battling graft vs. host disease since. He has developed bronchiolitis obliterans (BOS) and is in the end stages of lung disease. There is no cure. The only hope is regenerative stem cell therapies which are not covered by Jhaysonn’s insurance.
One of his most recent visits to the ER this past Easter weekend.
With his dear friend (not me). He has been told by doctors countless times “there’s nothing more we can do.” He continues to prove them wrong.
Celebrating his birthday!
Playing King of Tokyo.
With his mom on graduation day. Just a taste of his bright personality.
At his college graduation, before the diagnosis. Also, he’s an *amazing* Spanish guitar player.
Another day in the life of a superhero. Peace sign! ✌️always staying positive.
If you are willing to donate to help keep him alive, and IF I’m allowed to post this link, please visit: https://www.gofundme.com/help-jhaysonn-stay-alive
Spacecat2020
Imbruvica is approved for chronic Graft vs Host Disease. Has he talked to his doctor about it? Definitely worth a try.
SirTimTimOfSealand
Graft vs host is fucking horrifying, I wouldn’t wish it on my worst enemy.
mikeatc
This is a Imgur BTW
Jenkbi
Luck in battle, brother.
umpalumpasuckedmydong
PepperoniPizzaSlice
I found the tumor! It’s in all the extra unnecessary letters in his name
SolidBrassAndHangingLow
Stetson is down the road for me, sometimes I forget we are all people somewhere all over the world and some down the road. Wish him peace.
EliseProbably
Props to a fellow NIN fan
CuteThings
Since we missed his birthday. HAPPY BIRTHDAY!!
UsagiTheRabbit
Insurance companies are literally fucking satan.
godskook
C'mon man, you know the rules, nobody gets out of this game alive. The best you can do is aim to get the best score for your division.
5inthepoo
May you ride eternal! Shiny and chrome !
AbsolutelyZeroFucksGiven
Googled Graft vs Host because I was curious and that's some wild shit. Also, insanely bad luck because it's super rare. Feels bad man.
imnotgoodatdecidingthesetypesofthings
Really not trying to be a dick, but this is imgur. Not Reddit
spaghetarian
But... THIS ISN’T REDDIT!
LalaSchoolhouse
I’m sorry! I tried to change it but I can’t. You all are awesome!
OwenMillerOnline
It is crazy to me that stem cell research isn't more widely supported and the treatments aren't widely available.
Aurella
Right? My dad was given 6 months to live, and has been going strong 10+ years thanks to a stem cell transplant. Everyone should have access.
mydadcoulddoanything
Non Hodgkin’s lymphoma took my dad. That was the one thing he couldn’t do.
RickDyball
My brother got NHL and was given 5 years to live at best. That was 20 years ago. Been a slog but hes still here. Best wishes to your friend
WolfePhoto
the goggles, they did nauthing!
foxcutter
I'd probably die too if to that was my name. Yes, I'll see you in hell.
notabortedfetusnecophiliac
SterlingHuman
I upvoted this while simultaneously wanting to downvote based on feels
bambii23
I recently herd about a clinical trial at Stanford having positive results, right now they are only taking non-Hodgkin lymphoma patients..
bambii23
but if they are making headway there maybe another trial could help.
bambii23
https://med.stanford.edu/news/all-news/2018/01/cancer-vaccine-eliminates-tumors-in-mice.html
harrygee236624
Insurance. Hes a person treat the guy, what is wrong with society
UnpopularOpinionPuffinPersonified
It isn't an accepted treatment in the medical community for his problem. OP was a bit misleading in his/her commentary.
UnpopularOpinionPuffinPersonified
2/2 They haven't even done a single clinical trial for using it to treat lung disease yet and no long term or short term effects are known.
eetsumkaus
This. This is one of those times you just have to accept what's given to you. Best of luck to OP and his friend.
eetsumkaus
/2 also appropriate username
ABluntForce
I work for an insurance company. Government is a good amount of what's wrong with it, business is the rest.
LalaSchoolhouse
If you would like to donate https://www.gofundme.com/help-jhaysonn-stay-alive we are desperate and just trying to save him. Thank you all.
PastelSugarCookies
This is the kind of double dipping I like
skjuhl
Put it in the description
ILovedUnicornsFirst
Why have some many people donated $33 or $333? I was just curious the significance of the number.
FishstickPizza
My guess is connected to his age. Which is 33. I saw some comments about "33 for our 33 years we've lived" on the gofundme.
LalaSchoolhouse
He just turned 33. It’s monumental and his dad has been using that number as a celebratory amount for people to donate, via Facebook.
ILovedUnicornsFirst
Oh, okay. If I had thought about it for 5 minutes, I might have figured that out. Best of luck to your friend. I was sorry to read that.
Snooj
"We could cure him if only there was money." Man, fuck that noise. If we *can* cure someone, we *should*.
bluelawls
There's actually no evidence that it *can* cure anyone; OP was talking about an experimental procedure that hasn't been proven to help.
bishopolis
I think this is in America, where a car accident leads to a hospital and then bankruptcy. The option of treatment despite poverty is myth.
Snooj
To be a myth someone would have to believe it. No one here believes poor people get proper treatment.
bishopolis
Ask one of the political parties in the US about poverty-level people and healthcare. They show a vested interest in a perpetuated myth !
bishopolis
Strangely enough, poor people in every other G7 country get proper treatment. I think even Cuba's doing better. :-/
hoppedup
I think the spelling of his name just gave me cancer
GrandmaSlappy
I was debating posting this exact phrase and not sure how it would go over, stay classy imgur, my faith is restored in you.
DrewBerg
Tabrias
I thought OP had a seizure mid sentence
TheGillett
https://imgur.com/ND8sAJx
OfAlltheUsernamesonImgurThisisOne
wimetaste
Aahahaha
paxcincinnatus
You are a good friend and this sucks.
paxcincinnatus
Please don't forget his family if he passes - they will need his friends in their lives to keep his life present.
LalaSchoolhouse
Thank you, I’m just trying to help save him: www.jhaysonnscure.com
AustriaNotAustralia
I really dont want to sound disrespectful, my english is just not good enough. Does this mean there would be a cure, but you have to 1/2
AustriaNotAustralia
2/2 raise money because it is so expensive? Because the insurance does not cover it?
BrotherWhereArtThou
1/2 I think the idea is it's not a definite cure, but it's the only thing that could help him at this point, you're correct about it being
BrotherWhereArtThou
2/2 necessary to raise money because his insurance does not cover the potential cure.
theregoeslucy
Donated - fuck cancer and fuck insurance companies.
StaksiAVR
You are a good person
JennyHill
1. All the best to your friend. Have to say though - using terminology like 'battling', 'fighting' and 'losing' about people having cancer
LoodGookin
5) Cancer is shitty!!!
LoodGookin
1) I see your point and as someone who has a parent that is battling and fighting a rare cancer, the battle and fight is really them dealing
JennyHill
I know. My mom died from cancer 4 years ago. She had a shitty disease that killed her. That's all. It wasn't that she didn't try hard enough
LoodGookin
LoodGookin
3) to stop and end treatment. Which ultimately means death. If my parent would have given up earlier, they wouldn't have seen their g-daught
LoodGookin
4) -er to be born, and still see her to this day. Some days are shit for them, but there are still good ones. I feel for you and your loss
LoodGookin
2) with all the side effects of the chemo. The side effects are horrible, but the chemo is working. At times, the patients just want it all
JennyHill
2. is something a lot of cancer patients resent. Because it makes it seem that their outcome depends on them fighting rather than.
JennyHill
3. a complicated reaction between cancer and medicin. If they don't make it or it comes back,its not because they didn't fight hard enough.
Eipi
My mom has stage 4 terminal bone cancer and I never used that terminology. I never liked it. Some people say to her "keep fighting"... how?
PorkchoppSandwiches
All the best dude. Hearing someone can’t get a treatment because “insurance doesn’t cover it” makes my fucking blood boil.
CyrusTheOk
It is such ABSOLUTE BULLSHIT that the system would just let someone die because of money. Bloody hell.
waitwasthatreal
It is going to kill him either way, it’s a question of how much time an experimental treatment might add.
PickledDundersnoot
As a Canadian, that's a phrase I'm unfamiliar with. How has this kind of manslaughter-by-apathy not been fixed down there? 1st world or not?
waitwasthatreal
A Canadian wouldn’t get the treatment either.
LalaSchoolhouse
I’m right there with you. https://www.gofundme.com/help-jhaysonn-stay-alive any amount will help his fight. Thank you.
VagisilToothpaste
Welcome to the good ol' US of A...Where nobody gives a fuck if you die - because that just means you're poor and don't deserve to live!
PhantomGeek
Welcome to the world of a lot of us. I'm not complaining, I'd already be dead in other countries. #dontfearthereaper
hahahahahahahahahahahahahahahahahah
MURICA
Punificent1
Yeah, this is just not right.
AllyP
Was the first thing that sprang to my mind too. Fuck that fucking system
TurdFerguson14
America!!!
kiruwa
To be fair... you'd hear "NHS doesn't cover it" otherwise.
AllyP
NHS is far from perfect but on other hand the UK doesn't have a TV show about a cancer patient making meth. Potatoes potahtoes...
kiruwa
Yet another example of people assuming TV accurately reflects reality.
waitwasthatreal
Well it’s not an accepted treatment, so there’s a good chance most universal health systems wouldn’t cover it either.
ReiOhimesama
There are countries that provide "free" healthcare even if you're dying...
waitwasthatreal
Yes, and the don’t normally provide unproven treatment at a high cost.
ensensu
If he lives are they afraid of lawsuits?
waitwasthatreal
Probably not, it’s like everything else, they weigh the cost vs benefit. The cost is fairly high, and the benefit isn’t well proven
LurkerOfDarkness
Well they would look at his chances, their ability to perform it and such, not how much money the patient has.
waitwasthatreal
Cost is 100% part of the deliberation.
astrofuzzics
If there is no evidence the therapy works (i.e. "experimental"), there's no reason to cover it. Experimental therapies can kill people too.
LurkerOfDarkness
Of course it has to have reached the stage where treatment is in h man trials. It's not the dark ages.
astrofuzzics
Yes. But "in human trials" =/= "proven efficacy," so insurance shouldn't cover it. Usually the drug/device manufacturer sponsors trials.
MintMission
As much as I hate the system, some things are just too expensive to offer to everybody/may not have very high success. I don't know 1/2
teakasaurus
While this is true, insurance fights paying for even simple standard procedures and payouts as much as possible. u.u
MintMission
Generally true, depends on the insurance company ofc. I have had pretty good experience with Oregon state insurance, but most suck.
MintMission
about this specific therapy, but usually you do an analysis where you look at how many years of life are gained by a certain procedure 2/
MintMission
and if something is over 50k per extra year, it's usually not approved. Just remember treatment exists is not the same as, he could be 3/
MintMission
cured. He might receive the treatment and die 2 days later from complications. Having said that, this may or may not fall into this category
ascottdude
That's all nice and logical until it happens to you.
larsmaehlum
Would this be something imgurians could help with? I’d chip in if there was a GoFundMe or something.
teakasaurus
I suspect the ticking clock has advanced too far for that option
interiorcrocodileferaligatr
Do this! Please
JosephVissarionovichStalin
Fastolfe
I'd pop £100 in http://memegenerator.net/img/instances/28625637/you-have-my-axe.jpg @OP not sure how far that would go tho
Totallyscrewedinaustin
They put a gofundme link in post
LalaSchoolhouse
https://www.gofundme.com/help-jhaysonn-stay-alive Thank you for asking
PickledDundersnoot
Donated. Sharing story. Holding out hope for Jhay.
abarukajou
@OP please edit this into the post as im sure there are many willing donators in this (when it counts) wonderful community.
JMcDank
Yes definitely @OP
wimetaste
Excuse my ignorance, but why does he wear goggles?
polarbearrodeo
I wondered also.
DomoriGato
Because he hasn't earned his Ninja headband yet.
OverlordEd
He kinda looks badass like a superhero with them on though
AlmostClever
Or Ed from Cowboy Bebop!
deldrice
Likely moisture goggles to help manage ocular surface complications and reduce exposure while the immune system is reduced.
derpisasderpdoes
Riddick cosplay
TheLeagueOfExtraordinaryGentlememes
Holy shit, baggin on the guy, not sure wether mad props or be mad.
derpisasderpdoes
@ OP - no offence at all, and thank you for the post.
fundubentalist
riddick wasn't such a badass tho
MerToo
His name's spelled Jhaysonn and you're wondering about the goggles?!
MerToo
This is what happens when doctors can only spell phonetically & they ask the panting, exhausted mother what his name will be: "Juh-hays-onn"
wimetaste
Yeah seriously, I missed the biggest concern didn't I.
ArchChancellorRidcullywantstoseeyourboobies
That's what gave him cancer. Apologies for my humor.
ImyourHuckleberry9
waitwasthatreal
GvHD commonly has severe complications with the eyes. Much higher risk for infection, irritation, dry eyes, ulcers, and all sorts of things>
wimetaste
Thank you
acfivetimes
excuse my ignorance this time - what is GvHD?
OnlyBegottenDaughter
Graft vs. Host disease.
acfivetimes
nevermind - just googled. poor guy.
waitwasthatreal
Donor white blood cells recognize him as different and attack his body, very high mortality in severe cases.
acfivetimes
what is the incidence rate with bone marrow transplants, is it common?
waitwasthatreal
Reports vary, but chronic GvHD happens in around 40% of allogenic hematopoietic cell transplants, which he likely had.
waitwasthatreal
So I’m guessing he had them to protect his vision as much as possible for as long as possible.
seabrook00
Reading this reality made me feel so nauseous..
waitwasthatreal
Yeah, sadly there are many diseases we just don’t have the ability to treat well.
designjunkie
I’m more upset by the fact that gene therapy *could* help but “his insurance doesn’t cover it.” People dying because money < life.