Just another day as an autism support worker.

Mar 15, 2018 10:46 PM

I support a young adult with autism. He loves Vimto and jigsaw puzzles. He’s also non-verbal and has a few behavioural issues. He needs 1:1 care at all times. When he is ill he’s often unable to communicate clearly what is wrong and where/why, so he will try to draw attention to the fact he’s not feeling 100% in “unconventional” ways. My coworkers and I have had drinks poured over us, been scratched, had to clean up various bodily fluids, and had to salvage various household items from the toilet, when we haven’t been able to find the root of his problems (or we haven’t been able to solve them - he has one ongoing medical issue that he’s awaiting treatment for).
But this day was the worst. Recently, he ripped his bathroom sink off the wall. We had to prop it up with a chair while we called the housing maintenance company, to prevent water gushing out of the connecting pipes. He was so strong and so fast; one second he was sat on the toilet and the next he was holding his sink in his hands. 20mins later he snapped their kitchen tabletop clean in half. He’s generally a lovely, very sweet person and it must be so frustrating for him to not be able to tell us what’s wrong.

TL;DR: Young adult with autism pulls his sink off his wall trying to tell us that he’s feeling unwell.

I’m happy to try answer any questions you might have about support work/autism.

Have a child with severe autism is a big fear of mine. It seems like a ton of extra work with little to no reward for anyone involved

8 years ago | Likes 3 Dislikes 0

I think it would be a learning curve at first, but there would be good spells and bad spells. There is a lot of support available too.

8 years ago | Likes 2 Dislikes 0

Thanks for what you do - I've had some experience of it and it's damned hard work.

8 years ago | Likes 4 Dislikes 0

Thanks. Most of the time it’s a thankless, underpaid role: but if we were in it for the thanks or the money we wouldn’t be in the right job.

8 years ago | Likes 2 Dislikes 0

Reminds me of the girl who suddenly started typing one day - and told her family how everything hurts all the time :(

8 years ago | Likes 6 Dislikes 0

I worry about this sometimes, about how much quality of life he really has. Unfortunately his learning disability is so severe he (1/2)

8 years ago | Likes 3 Dislikes 0

Cannot type or even really sign. His understanding of language is comparable to a dog that understands familiar commands and gestures (2/2)

8 years ago | Likes 3 Dislikes 0