These posts piss me off.

Jan 15, 2017 2:27 PM

RandomMarien

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A friend posted this this morning, and I wanted to share what I told her with you guys.

As context, I am a photographer with a heart for the special needs community. I have worked with people with special needs since I was 18. People with autism have a special place in my heart and it breaks my heart to see anti-vax people treat them like they're the scum of the earth and nothing could be worse than having what they have.

Here's my comment to my friend:

I seriously hate these. In 1975, having autism was one of the "worst possible dianoses" because doctors swore up and down that parents' children were totally gone and they were basically just bodies with no brains in them. Individuals with autism were locked away, hidden from the world, grossly mistreated, or often times parents just didn't even take them in to get checked because they didn't even want to know and just lived in denial without getting their children help.

Thankfully, throughout the years we have learned so much about autism and the amazing people that have this diagnosis. Parents are less afraid to get their children diagnosed because there are therapies, medications, and tools which can help them control their bodies which do not obey their amazing brains. The official recorded numbers have increased because doctors know how to recognize it and parents are less afraid to receive the diagnosis.

In 2013 the disgnoses of "autism" "aspergers syndrome" and some severe cases of ADHD were placed under the umbrealla term of "Autism Spectrum Disorder" or ASD. This is because reasearchers realized that autism was too wide and unpredictable a disorder to be placed in such small boxes. Those who might previously have been diagnosed as having aspergers are now considered to be "high on the autism spectrum." Vs. those who were diagnosed with "severe autism" are considered lower on the spectrum.

It is a diagnoses that is not fully understood. There is research being [done] (at one point said "down") that is helping us understand bits and pieces, but we don't know the whole story yet. However, in my personal experience I have never ONCE met an individual with autism who was not incredibly smart, empathetic, and compassionate. Whether their bodies were able to show it on the outside or not. I have had conversations about deep political issues with a man with autism who can't speak and needs help getting dressed in the morning. I spent all yesterday walking the riverwalk with a man with autism, he showed me his favorite spots, took me to his favorite ice cream shop, and drove me home. Autism is not so rapidly increasing, while I am not denying that it has more than likely increased a bit. It is becoming more understood and better diagnosed, and our treatment both medically and socially of individuals with autism is at an all time high. Posts like these make autism scary again. It's not an easy diagnoses and those with autism face many many challenges in their lives. But it's not a death sentence. Some of the most amazing people I know have autism and you know what? The world would probably be a better place if there were more people like them.

My friend who loves politics. He speaks using what's called a "letter board." It looks kind of like an alphabet stencil, but if someone holds his elbow and steadies his arm he is able to point to individual letters and spell out full, complex sentences. However he cannot speak aloud and his fine motor skills are not all that great so he needs a fair bit of help with most things. He still helps with chores around the house and does everything he can to tell his parents how much he appreciates them accepting him and helping him be as independent as possible.

This is my friend who I went downtown with. He drove and we did his senior portraits because he is graduating in may. He is a jeweler and metalsmith and made each of his bracelets and rings he's wearing. He is going to school for Metals and has a pretty good scholarship to a small school out of state. He is very independent and very confident, some things still make him nervous though like the thought of rooming with just one other person who may not understand some of the reasons behind his behavior. Both these men have autism, and I just wanted to sort of show that spectrum side of it.

Just in advance, as a side note, this is all coming from personal experience. I am not saying that autism is not increasing as it has been several years since I researched numbers. I am not saying that every parent in the 70s and 80s treated those with autism horribly. I am not trying to offend those parents if you are one. Just that it was not uncommon for individuals who could outdo the smartest mathematicians if given the chance to be locked away in a closet to work on puzzles because that was "all they could do."

Thanks for reading and remember, be kind to others!

FP Edit:
Wow thanks for the upvotes, guys! It's good to see that people are interested in learning about this topic.
I apologize that it's a lot of text and I forgot to do a TL;DR, I just get really really passionate about this subject and don't realize how much I type out :)

TL;DR Photographer with a heart for individuals with special needs discusses why the ideas that autism is rapidly increasing aren't necessarily true because of changing in definition/acceptance of the diagnosis, and talks about why people with autism are wonderful and smart and worth your time! :)

Second edit: There seems to be some confusion and I apologize for not making this clarification originally. When someone is referred to as being being "high on the spectrum," it refers to them being higher functioning than those considered lower on the spectrum. So my metalsmith friend would be higher on the spectrum than my friend who cannot speak verbally. Hope this clears things up!

TLDR overdiagnosis and changes in the way we diagnose things are skewing the numbers.

9 years ago | Likes 3 Dislikes 0

THANK YOU.

9 years ago | Likes 3 Dislikes 0

You may be kind but, german kids are kinder.

9 years ago | Likes 3 Dislikes 0

Even now girls, adults, and POC are underdiagnosed for autism and related disorders bc they're always illustrated with young white boys

9 years ago | Likes 8 Dislikes 1

I agree :/ unfortunately I live in a mainly white area & know mostly males with autism on a personal level so my own work is skewed as well

9 years ago | Likes 5 Dislikes 0

I spent my childhood in the 60s seeing psychs who told me to shape up and my mother to be a better parent. I have no doubt that 1/2

9 years ago | Likes 4 Dislikes 0

today I'd be diagnosed with Apergers. The change is wholly due to diagnosis attitudes imho.

9 years ago | Likes 6 Dislikes 0

@OP that metal work looks amazing. He should set up an etsy or something

9 years ago | Likes 3 Dislikes 0

I agree!:)

9 years ago | Likes 3 Dislikes 0

When 1 in 50 people have something, I am suspicious that it's even a "disorder". Perhaps the current definition is too broad.

9 years ago | Likes 5 Dislikes 0

The DSM 4 had diagnosis divided as Typical and Atypical, I think specific diagnosis was better.

9 years ago | Likes 2 Dislikes 0

This hits close to home since my brother is autistic. We need more people like you in the world, @op.

9 years ago | Likes 6 Dislikes 1

Thank you, that means a ton <3

9 years ago | Likes 4 Dislikes 1

As someone with Aspergers (that's what I was diagnosed with. That's what I'm sticking with) I really appreciate this post! Thank you

9 years ago | Likes 5 Dislikes 0

There's nothing wrong with calling it Aspergers :) I do the same! I just wanted to help explain the "increase". And you are so welcome!

9 years ago | Likes 3 Dislikes 0

Haha, wicked! My psyche told she wishes Asperger's would come back, as under the new ASD label I barely met what it asks for now.

9 years ago | Likes 1 Dislikes 0

Autism is a shitty diagnosis that does nothing to solve the problem. source: france

9 years ago | Likes 3 Dislikes 0

France is very cruel in dealing with it :(

9 years ago | Likes 2 Dislikes 1

Ah ok

2 years ago | Likes 1 Dislikes 0

Went to college with a guy that has autism, genius when it came to coding and math and just a little socially awkward, always nice to people

9 years ago | Likes 5 Dislikes 0

One of my coworkers is married to a man like this. Super nice, super smart, super painfully socially awkward.

9 years ago | Likes 1 Dislikes 0

I mean I've met people that aren't diagnosed with anything who are extremely awkward but they also aren't that smart haha

9 years ago | Likes 2 Dislikes 0

My son is on the autism spectrum. I think the numbers are increasing due to them changing the spectrum and what is classified as autism.

9 years ago | Likes 8 Dislikes 1

Exactly :)

9 years ago | Likes 7 Dislikes 1

As someone with Asperger's, this brightened my spirits tremendously. :D

9 years ago | Likes 8 Dislikes 1

Hooray!:D

9 years ago | Likes 2 Dislikes 0

Same here, thank you!

9 years ago | Likes 2 Dislikes 0

School of Metals sounds pretty hardcore \,,/

9 years ago | Likes 24 Dislikes 0

As a father with a child with autism, I can sympathize. It's important that people come to terms with the autism diagnosis and learn what it

9 years ago | Likes 5 Dislikes 0

Means. The more people come to understand it, the more they can learn to interact with those with autism in a way that is beneficial and

9 years ago | Likes 5 Dislikes 0

Productive for everyone.

9 years ago | Likes 3 Dislikes 0

Exactly! :)

9 years ago | Likes 4 Dislikes 0

My son was recently diagnosed, we still get "but he doesnt look autistic?" Shows how far we still have to go to understand its variances.

9 years ago | Likes 7 Dislikes 2

Exactly. There's a quote that says "If you've met one person with autism... you've met one person with autism." While there are some (1/2)

9 years ago | Likes 5 Dislikes 1

traits which are fairly consistent throughout the diagnoses, they are all such different individuals with their own personalities and traits

9 years ago | Likes 5 Dislikes 0

It's great because he finally gets help we knew he needed, but then again the stigma is still that it's seen as almost a cancer, shameful.

9 years ago | Likes 5 Dislikes 0

Sorry i can't up vote you more.

9 years ago | Likes 2 Dislikes 0

Agreed. It absolutely breaks my heart that it's treated as a disease or that people who are diagnosed with it are "sick."

9 years ago | Likes 5 Dislikes 0

head injuries increased dramatically after the introduction of steel helmets in WW1...cuz they could actually report being shot in the head

9 years ago | Likes 3 Dislikes 0

Haha dude that's a perfect analogy

9 years ago | Likes 1 Dislikes 0

Haha dude that's a perfect analogy

9 years ago | Likes 1 Dislikes 0

there were really some officers back than ,which believed that these fancy new helmets are useless ,,,and boy they couldnt be more wrong

9 years ago | Likes 1 Dislikes 0

I have aspergers and i've learned to praise it. I don't think i'd be as smart and analytical as i am without it. I've also learned how (1/2)

9 years ago | Likes 7 Dislikes 1

To be social, and less awkward around people. It's not hard if you keep working at it! (2/2)

9 years ago | Likes 4 Dislikes 1

Whoo! I'm glad!

9 years ago | Likes 1 Dislikes 0

Whoo! I'm glad!

9 years ago | Likes 3 Dislikes 0

I've met quite a few twats with autism. I also have it. People with autism are just that: People. And just like everyone else, they can be 1

9 years ago | Likes 18 Dislikes 0

wonderful people, or they can be cunts. It annoys me just as much when I hear things like "people with autism are wonderful people" etc as 2

9 years ago | Likes 14 Dislikes 0

it does when we're treated like scum. 3

9 years ago | Likes 10 Dislikes 0

I'm sorry if I generalized too much. My point was definitely what you were saying that people with autism are just people. Personalities (1)

9 years ago | Likes 5 Dislikes 0

play a role in anyone's lives, including those with autism. Everyone has the possibility to be a good person or a bad one. However not (2)

9 years ago | Likes 5 Dislikes 0

everyone diagnosed with autism is as scary or incapable of rational thought as it seems like our society thinks sometimes (3)

9 years ago | Likes 5 Dislikes 0

The Refrigerator Mothers doc. Was very interesting. In the 50s and 60s doctors believed being cold to your child caused autism.

9 years ago | Likes 4 Dislikes 0

I'll watch it! It's sad that that's what was believed :(

9 years ago | Likes 3 Dislikes 0

Sigmond Freud also believed in that thinking.

9 years ago | Likes 2 Dislikes 0

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9 years ago (deleted Mar 12, 2020 3:17 AM) | Likes 0 Dislikes 0

I think he means the whole "having a mother who acts cold to you fucks up your mentality" kind of thing. Probably not autism exactly.

9 years ago | Likes 1 Dislikes 0

Yeah that's possible. But in this case that's true, contrary to the refrigerator mother theory.

9 years ago | Likes 1 Dislikes 0

I work in a self contained classroom for kids with several autism. All nonverbal and limited verbal. They may hit and scream and test my

9 years ago | Likes 4 Dislikes 0

*severe....autocorrect is not my friend

9 years ago | Likes 1 Dislikes 0

Patience, but their smiles and hugs when you are able to connect to them in their world is worth every second.

9 years ago | Likes 6 Dislikes 0

We are so glad to have patient, intelligent people like you on places where a difference can be made. Thank You.

9 years ago | Likes 3 Dislikes 0

Exactly <3 thank you for what you do! Often times the way teachers treat them can make a huge difference in the life of someone with autism

9 years ago | Likes 5 Dislikes 0

As someone with a "rare" condition, (see: rarely diagnosed) I wish we'd see this increase! Then we might actually get some damn funding!

9 years ago | Likes 7 Dislikes 1

Oh man! I hope so too! That's gotta be difficult :/

9 years ago | Likes 4 Dislikes 0

They tell us the day we are diagnosed that: "There is no treatment. No cure. The pain will only get worse. This is your life now."

9 years ago | Likes 2 Dislikes 0

And then wonder why the suicide rates are so high and why there's such a backlash with pain medications....

9 years ago | Likes 1 Dislikes 0

We're all born with it but the average age diagnosed is 25. They think only the worst cases have ever been diagnosed, only 5% out of all.

9 years ago | Likes 1 Dislikes 0

Wow :o it's totally fine if you don't want to say, but do you mind my asking what it is? I'm interested in researching and getting informed

9 years ago | Likes 2 Dislikes 0

Ehlers-Danlos Syndrome http://www.ednf.org is the best place for information! Most people only present with slight "double jointed" symptoms

9 years ago | Likes 2 Dislikes 0

I will definitely read up on it, thank you!

9 years ago | Likes 3 Dislikes 0

TL;DR: autistic ppl are awesome. Autism diagnoses are on the rise while autism itself probably isn't.

9 years ago | Likes 42 Dislikes 11

Thank you!

9 years ago | Likes 2 Dislikes 0

Autistic people are people. Some are awesome, some are assholes. Just like every other kind of people.

9 years ago | Likes 14 Dislikes 0

Can confirm. I am an asshole high-functioning autistic person.

9 years ago | Likes 2 Dislikes 0

True true

9 years ago | Likes 5 Dislikes 1

My 15 year old son has autism, he's incredible. Thank you for this post!

9 years ago | Likes 143 Dislikes 7

Is it high or low functioning?

9 years ago | Likes 1 Dislikes 0

You are so welcome! <3

9 years ago | Likes 32 Dislikes 3

same here. Not always easy....

9 years ago | Likes 6 Dislikes 0

*waves hands in the air* I have autism

9 years ago | Likes 2 Dislikes 1

*waves hands in the air* I have autism

9 years ago | Likes 2 Dislikes 1

(1) I was diagnosed with Asperger's /ASD in 2015, at then 35 years age. That doesn't mean I suddenly "developed autism".

9 years ago | Likes 27 Dislikes 1

Wait, you didn't get vaccinated until this year when you turned 35?

9 years ago | Likes 2 Dislikes 1

(3) considered something like that until my doctor suggested a psychological evaluation after I got burnt out a second time.

9 years ago | Likes 10 Dislikes 0

burnt out?

9 years ago | Likes 1 Dislikes 0

Same here man, diagnosed at 23 years old in 2016.

9 years ago | Likes 3 Dislikes 1

Yup. As an aspergerian myself, didn't know until I was 25 when a counselor brought it up. :)

9 years ago | Likes 4 Dislikes 1

Ooh, I like that. Aspbergian is way better than aspie.

9 years ago | Likes 1 Dislikes 0

(2) it just means I finally have an explanation for issues I've had my whole life. I was functioning decently enough that I never even

9 years ago | Likes 18 Dislikes 0

Exactly :) I am glad you were able to get an explanation and recognize that it doesn't change who you are as a person:)

9 years ago | Likes 6 Dislikes 0

(4) But it explains sooo much, especially why certain things have been much harder for me than they "should" have been.

9 years ago | Likes 10 Dislikes 0

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9 years ago (deleted Apr 16, 2019 6:40 PM) | Likes 0 Dislikes 0

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9 years ago (deleted Jan 29, 2017 6:54 PM) | Likes 0 Dislikes 0

probably cause your comment triple posted

9 years ago | Likes 1 Dislikes 0

What kinds of things?

9 years ago | Likes 3 Dislikes 0

So when my son was diagnosed on the Autistic scale, I asked his doctor about this very same thing. Her response was that we have a better

9 years ago | Likes 196 Dislikes 1

When my brother was diagnosed in the 90s the doctor said to my mum "lower your expectations." She didn't. He has 2 university degrees now.

9 years ago | Likes 15 Dislikes 0

Good for her, it's this alone that can make or break someone on the spectrum become a contributing member of society who is self sufficient.

9 years ago | Likes 1 Dislikes 0

In the one or two things he maybe/is interested in; he may as well be Neil DeGrasse Tyson.

9 years ago | Likes 3 Dislikes 1

In the one or two things he's interested in; he may as well be NDT.

9 years ago | Likes 3 Dislikes 1

understanding of what Autism is, and what's more included in the spectrum. Those who used to be withdrawn, quiet children, now we seeing

9 years ago | Likes 175 Dislikes 2

as autistic. I also live in a state with very abnormal rates for autism.

9 years ago | Likes 108 Dislikes 2

"Abnormal" rates for autism usually correlate with wealth and focus on healthcare, which is why states like UT and AZ have higher rates.

9 years ago | Likes 8 Dislikes 2

Yeah exactly. More children are being diagnosed and getting the help they need. And antivaxers are using it as this horrible negative thing

9 years ago | Likes 76 Dislikes 2

As an introvert, I worry that introvert kids are getting diagnosed with autism and treated in an attempt to change their personality.

9 years ago | Likes 6 Dislikes 2

The symptoms for autism are a far cry from introversion. Borderline ASD plus introversion aside, that shouldn't really happen.

9 years ago | Likes 3 Dislikes 0

what gets me most about this is that anti vaxxers think that dying of preventable diseases would be preferable to being autistic. Like 1/2

9 years ago | Likes 4 Dislikes 0

thanks that you think a condition makes me so worthless as to think that dying of preventable diseases is much better

9 years ago | Likes 5 Dislikes 0

9 years ago | Likes 518 Dislikes 8

It's so accurate that it hurts

9 years ago | Likes 1 Dislikes 2

Google next line is, "just because I have it doesn't make it true!!!"

9 years ago | Likes 48 Dislikes 0

JUST BECAUSE I HAVE IT DOESN'T MEAN ITS TRUE

9 years ago | Likes 3 Dislikes 0

Ah two post with a very highly upvoted comment, congrats

9 years ago | Likes 2 Dislikes 0

Well, vaccines do allow babies to live long enough to be diagnosed with autism soooo technically this isn't wrong.

9 years ago | Likes 20 Dislikes 0

Hahaha. I now know what to reply to my crazy anti vaxxer aunt.

9 years ago | Likes 4 Dislikes 0

Such cringe xD

9 years ago | Likes 81 Dislikes 12

Do you squee or do you XD?

9 years ago | Likes 5 Dislikes 16

YEAH SO CRINGY XDDDXDXDXD

9 years ago | Likes 13 Dislikes 11

9 years ago | Likes 30 Dislikes 1

Pretty much exactly my face when people talk about vaccines causing autism xD

9 years ago | Likes 12 Dislikes 2

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9 years ago (deleted Jan 28, 2017 10:37 PM) | Likes 0 Dislikes 0

¯\_(ツ)_/¯

9 years ago | Likes 1 Dislikes 7

¯\_(ツ)_/¯

9 years ago | Likes 11 Dislikes 8

Did you know that before we discovered autism there were no diagnosed cases of autism?? What did we do wrong?!?

9 years ago | Likes 60 Dislikes 3

Like claiming Newton discovered the laws of gravity. What makes sense about this is our having made a definition well understood.

9 years ago | Likes 2 Dislikes 0

9 years ago | Likes 8 Dislikes 0

Like in the past, nobody ever died of cancer. They just died. Ever since cancer was discovered, people have been dying from it like crazy.

9 years ago | Likes 3 Dislikes 0

On the positive side, though, deaths from evil spirits and imbalances of the humours are WAY down.

9 years ago | Likes 2 Dislikes 0

Whaaaat? :o

9 years ago | Likes 17 Dislikes 0

It's called a joke, you'll be ok. *pats on the back reassuringly*

9 years ago | Likes 5 Dislikes 10

I was being sarcastic back :P

9 years ago | Likes 4 Dislikes 2

I was being sarcastic back :P

9 years ago | Likes 8 Dislikes 1

Your comment wasn't good at conveying that. I don't think I deserved the down vote.

9 years ago | Likes 2 Dislikes 3

I didn't downvote you ¯\_(ツ)_/¯

9 years ago | Likes 5 Dislikes 0

I didn't downvote you ¯\_(ツ)_/¯

9 years ago | Likes 5 Dislikes 0

Too many people are falsely diagnosed. There is no blood test and tiny delays in development as a child can get you a false diagnosis. 1/2

9 years ago | Likes 8 Dislikes 2

2/2 also being diagnosed can ruin your future. People have been discharged from the military once an ASD has been discovered in their past.

9 years ago | Likes 4 Dislikes 2

My sister was diagnosed with aspergers at 14 and I feel like if she hadn't been diagnosed she'd be a lot farther in life than she is now.

9 years ago | Likes 2 Dislikes 0

Too many bad parents write off poor behavior as ASD. It gives bad parents a self gratifying excuse. "It's not me, it's my child."

9 years ago | Likes 7 Dislikes 2

And considering that parent evaluations go into an ASD evaluation and could lead to a diagnosis... Deeply concerning.

9 years ago | Likes 6 Dislikes 2

Even worse, as someone in the field I've heard about parents that would go to 5-6 pediatricians before obtaining the diagnosis

9 years ago | Likes 1 Dislikes 0

Wow. That's crazy.

9 years ago | Likes 1 Dislikes 1

And they would hide the previous evaluations until they got it...

9 years ago | Likes 1 Dislikes 0

as someone with Aspergers, we need more people like you.

9 years ago | Likes 140 Dislikes 9

Agreed.

9 years ago | Likes 6 Dislikes 0

Autistic here too fellas :D

9 years ago | Likes 5 Dislikes 0

Also someone with Aspies. My life's not been a bundle of fun but I've had a good run so far. Just goes to show even people like us are great

9 years ago | Likes 4 Dislikes 0

ASD with HFA here

9 years ago | Likes 3 Dislikes 0

As someone with aspergers too I don't see this enough, op is awesome.

9 years ago | Likes 8 Dislikes 0

This!

9 years ago | Likes 2 Dislikes 0

ADHD over here, not very severe though

9 years ago | Likes 3 Dislikes 0

Amen to that! I'm an aspie here too, and definitely pro-vaccine

9 years ago | Likes 1 Dislikes 0

Agreed.

9 years ago | Likes 3 Dislikes 0

I'm high functioning with an autistic child of my own. We always need voices speaking up for acceptance of people on the spectrum.

9 years ago | Likes 10 Dislikes 0

Aww I'm autistic too guys!

9 years ago | Likes 10 Dislikes 1

Thank you, that means so much <3

9 years ago | Likes 26 Dislikes 1

Me too! Finally got the correct identification last year!

9 years ago | Likes 3 Dislikes 0

Same here

9 years ago | Likes 6 Dislikes 0

Autistic here too fellas :D

9 years ago | Likes 12 Dislikes 1

As someone with Asperger's, I get super excited when it's mentioned <3

9 years ago | Likes 7 Dislikes 0

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9 years ago (deleted Apr 5, 2018 8:43 AM) | Likes 0 Dislikes 0

Yeeeesss, it's great!

9 years ago | Likes 1 Dislikes 0

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9 years ago (deleted May 26, 2024 7:06 PM) | Likes 0 Dislikes 0

hey me too!!

9 years ago | Likes 2 Dislikes 0

Is that rare? I never knew that! I actually went to a school for autistic kids in middle school (I left because it was horrible for (1/??

9 years ago | Likes 2 Dislikes 0

The high-functioning kids) but I had quite a few female friends with Aspergers. I guess that's just sampling bias though, because it WAS 2/3

9 years ago | Likes 2 Dislikes 0

A school for autistic kids.

9 years ago | Likes 2 Dislikes 0

I think it's more that Aspie girls are diagnosed less, especially considering our symptoms are slightly different than boys.

9 years ago | Likes 1 Dislikes 0

Bruh , aspergers here also

9 years ago | Likes 41 Dislikes 0

Hey, me too!

9 years ago | Likes 22 Dislikes 0

Autism squad over here

9 years ago | Likes 7 Dislikes 0

Me too!

9 years ago | Likes 18 Dislikes 0

Ditto

9 years ago | Likes 10 Dislikes 0

Same here.

9 years ago | Likes 6 Dislikes 0

Yo! Son with aspergers as well. Both high functioning.

9 years ago | Likes 2 Dislikes 0