RandomMarien
344245
6735
294
A friend posted this this morning, and I wanted to share what I told her with you guys.
As context, I am a photographer with a heart for the special needs community. I have worked with people with special needs since I was 18. People with autism have a special place in my heart and it breaks my heart to see anti-vax people treat them like they're the scum of the earth and nothing could be worse than having what they have.
Here's my comment to my friend:
I seriously hate these. In 1975, having autism was one of the "worst possible dianoses" because doctors swore up and down that parents' children were totally gone and they were basically just bodies with no brains in them. Individuals with autism were locked away, hidden from the world, grossly mistreated, or often times parents just didn't even take them in to get checked because they didn't even want to know and just lived in denial without getting their children help.
Thankfully, throughout the years we have learned so much about autism and the amazing people that have this diagnosis. Parents are less afraid to get their children diagnosed because there are therapies, medications, and tools which can help them control their bodies which do not obey their amazing brains. The official recorded numbers have increased because doctors know how to recognize it and parents are less afraid to receive the diagnosis.
In 2013 the disgnoses of "autism" "aspergers syndrome" and some severe cases of ADHD were placed under the umbrealla term of "Autism Spectrum Disorder" or ASD. This is because reasearchers realized that autism was too wide and unpredictable a disorder to be placed in such small boxes. Those who might previously have been diagnosed as having aspergers are now considered to be "high on the autism spectrum." Vs. those who were diagnosed with "severe autism" are considered lower on the spectrum.
It is a diagnoses that is not fully understood. There is research being [done] (at one point said "down") that is helping us understand bits and pieces, but we don't know the whole story yet. However, in my personal experience I have never ONCE met an individual with autism who was not incredibly smart, empathetic, and compassionate. Whether their bodies were able to show it on the outside or not. I have had conversations about deep political issues with a man with autism who can't speak and needs help getting dressed in the morning. I spent all yesterday walking the riverwalk with a man with autism, he showed me his favorite spots, took me to his favorite ice cream shop, and drove me home. Autism is not so rapidly increasing, while I am not denying that it has more than likely increased a bit. It is becoming more understood and better diagnosed, and our treatment both medically and socially of individuals with autism is at an all time high. Posts like these make autism scary again. It's not an easy diagnoses and those with autism face many many challenges in their lives. But it's not a death sentence. Some of the most amazing people I know have autism and you know what? The world would probably be a better place if there were more people like them.
My friend who loves politics. He speaks using what's called a "letter board." It looks kind of like an alphabet stencil, but if someone holds his elbow and steadies his arm he is able to point to individual letters and spell out full, complex sentences. However he cannot speak aloud and his fine motor skills are not all that great so he needs a fair bit of help with most things. He still helps with chores around the house and does everything he can to tell his parents how much he appreciates them accepting him and helping him be as independent as possible.
This is my friend who I went downtown with. He drove and we did his senior portraits because he is graduating in may. He is a jeweler and metalsmith and made each of his bracelets and rings he's wearing. He is going to school for Metals and has a pretty good scholarship to a small school out of state. He is very independent and very confident, some things still make him nervous though like the thought of rooming with just one other person who may not understand some of the reasons behind his behavior. Both these men have autism, and I just wanted to sort of show that spectrum side of it.
Just in advance, as a side note, this is all coming from personal experience. I am not saying that autism is not increasing as it has been several years since I researched numbers. I am not saying that every parent in the 70s and 80s treated those with autism horribly. I am not trying to offend those parents if you are one. Just that it was not uncommon for individuals who could outdo the smartest mathematicians if given the chance to be locked away in a closet to work on puzzles because that was "all they could do."
Thanks for reading and remember, be kind to others!
FP Edit:
Wow thanks for the upvotes, guys! It's good to see that people are interested in learning about this topic.
I apologize that it's a lot of text and I forgot to do a TL;DR, I just get really really passionate about this subject and don't realize how much I type out :)
TL;DR Photographer with a heart for individuals with special needs discusses why the ideas that autism is rapidly increasing aren't necessarily true because of changing in definition/acceptance of the diagnosis, and talks about why people with autism are wonderful and smart and worth your time! :)
Second edit: There seems to be some confusion and I apologize for not making this clarification originally. When someone is referred to as being being "high on the spectrum," it refers to them being higher functioning than those considered lower on the spectrum. So my metalsmith friend would be higher on the spectrum than my friend who cannot speak verbally. Hope this clears things up!
MechAnon
TLDR overdiagnosis and changes in the way we diagnose things are skewing the numbers.
TSMBros12
THANK YOU.
JustSomeRandomMan
You may be kind but, german kids are kinder.
thecuteocalypseishere
Even now girls, adults, and POC are underdiagnosed for autism and related disorders bc they're always illustrated with young white boys
RandomMarien
I agree :/ unfortunately I live in a mainly white area & know mostly males with autism on a personal level so my own work is skewed as well
UnluckyLunkhead
I spent my childhood in the 60s seeing psychs who told me to shape up and my mother to be a better parent. I have no doubt that 1/2
UnluckyLunkhead
today I'd be diagnosed with Apergers. The change is wholly due to diagnosis attitudes imho.
SurpriseFatGuy
@OP that metal work looks amazing. He should set up an etsy or something
RandomMarien
I agree!:)
OaksParcel
When 1 in 50 people have something, I am suspicious that it's even a "disorder". Perhaps the current definition is too broad.
Mohawklynx
The DSM 4 had diagnosis divided as Typical and Atypical, I think specific diagnosis was better.
putyourpawsuplikeyoujustdontgiveafuck
This hits close to home since my brother is autistic. We need more people like you in the world, @op.
RandomMarien
Thank you, that means a ton <3
bartyartu
As someone with Aspergers (that's what I was diagnosed with. That's what I'm sticking with) I really appreciate this post! Thank you
RandomMarien
There's nothing wrong with calling it Aspergers :) I do the same! I just wanted to help explain the "increase". And you are so welcome!
Mohawklynx
Haha, wicked! My psyche told she wishes Asperger's would come back, as under the new ASD label I barely met what it asks for now.
drunkcat
Autism is a shitty diagnosis that does nothing to solve the problem. source: france
Mohawklynx
France is very cruel in dealing with it :(
rapidquackattack42
Ah ok
vanilla4gorilla
Went to college with a guy that has autism, genius when it came to coding and math and just a little socially awkward, always nice to people
OmNachoMama
One of my coworkers is married to a man like this. Super nice, super smart, super painfully socially awkward.
vanilla4gorilla
I mean I've met people that aren't diagnosed with anything who are extremely awkward but they also aren't that smart haha
jetmechanicguy
My son is on the autism spectrum. I think the numbers are increasing due to them changing the spectrum and what is classified as autism.
RandomMarien
Exactly :)
manspeed
As someone with Asperger's, this brightened my spirits tremendously. :D
RandomMarien
Hooray!:D
Axiluvia
Same here, thank you!
KuistiPanu
School of Metals sounds pretty hardcore \,,/
LtColThorin
As a father with a child with autism, I can sympathize. It's important that people come to terms with the autism diagnosis and learn what it
LtColThorin
Means. The more people come to understand it, the more they can learn to interact with those with autism in a way that is beneficial and
LtColThorin
Productive for everyone.
RandomMarien
Exactly! :)
SomethingSomethingTraLaLa
My son was recently diagnosed, we still get "but he doesnt look autistic?" Shows how far we still have to go to understand its variances.
RandomMarien
Exactly. There's a quote that says "If you've met one person with autism... you've met one person with autism." While there are some (1/2)
RandomMarien
traits which are fairly consistent throughout the diagnoses, they are all such different individuals with their own personalities and traits
SomethingSomethingTraLaLa
It's great because he finally gets help we knew he needed, but then again the stigma is still that it's seen as almost a cancer, shameful.
tomattow
Sorry i can't up vote you more.
RandomMarien
Agreed. It absolutely breaks my heart that it's treated as a disease or that people who are diagnosed with it are "sick."
svon1
head injuries increased dramatically after the introduction of steel helmets in WW1...cuz they could actually report being shot in the head
RandomMarien
Haha dude that's a perfect analogy
RandomMarien
Haha dude that's a perfect analogy
svon1
there were really some officers back than ,which believed that these fancy new helmets are useless ,,,and boy they couldnt be more wrong
vaktrus
I have aspergers and i've learned to praise it. I don't think i'd be as smart and analytical as i am without it. I've also learned how (1/2)
vaktrus
To be social, and less awkward around people. It's not hard if you keep working at it! (2/2)
RandomMarien
Whoo! I'm glad!
RandomMarien
Whoo! I'm glad!
MrWoodchip
I've met quite a few twats with autism. I also have it. People with autism are just that: People. And just like everyone else, they can be 1
MrWoodchip
wonderful people, or they can be cunts. It annoys me just as much when I hear things like "people with autism are wonderful people" etc as 2
MrWoodchip
it does when we're treated like scum. 3
RandomMarien
I'm sorry if I generalized too much. My point was definitely what you were saying that people with autism are just people. Personalities (1)
RandomMarien
play a role in anyone's lives, including those with autism. Everyone has the possibility to be a good person or a bad one. However not (2)
RandomMarien
everyone diagnosed with autism is as scary or incapable of rational thought as it seems like our society thinks sometimes (3)
spoobydoo
The Refrigerator Mothers doc. Was very interesting. In the 50s and 60s doctors believed being cold to your child caused autism.
RandomMarien
I'll watch it! It's sad that that's what was believed :(
Mohawklynx
Sigmond Freud also believed in that thinking.
[deleted]
[deleted]
spoobydoo
I think he means the whole "having a mother who acts cold to you fucks up your mentality" kind of thing. Probably not autism exactly.
Gustambol
Yeah that's possible. But in this case that's true, contrary to the refrigerator mother theory.
PleaseDontReadThisUsername
I work in a self contained classroom for kids with several autism. All nonverbal and limited verbal. They may hit and scream and test my
PleaseDontReadThisUsername
*severe....autocorrect is not my friend
PleaseDontReadThisUsername
Patience, but their smiles and hugs when you are able to connect to them in their world is worth every second.
tomattow
We are so glad to have patient, intelligent people like you on places where a difference can be made. Thank You.
RandomMarien
Exactly <3 thank you for what you do! Often times the way teachers treat them can make a huge difference in the life of someone with autism
notyouraveragedingleberry
As someone with a "rare" condition, (see: rarely diagnosed) I wish we'd see this increase! Then we might actually get some damn funding!
RandomMarien
Oh man! I hope so too! That's gotta be difficult :/
notyouraveragedingleberry
They tell us the day we are diagnosed that: "There is no treatment. No cure. The pain will only get worse. This is your life now."
notyouraveragedingleberry
And then wonder why the suicide rates are so high and why there's such a backlash with pain medications....
notyouraveragedingleberry
We're all born with it but the average age diagnosed is 25. They think only the worst cases have ever been diagnosed, only 5% out of all.
RandomMarien
Wow :o it's totally fine if you don't want to say, but do you mind my asking what it is? I'm interested in researching and getting informed
notyouraveragedingleberry
Ehlers-Danlos Syndrome http://www.ednf.org is the best place for information! Most people only present with slight "double jointed" symptoms
RandomMarien
I will definitely read up on it, thank you!
betterave
TL;DR: autistic ppl are awesome. Autism diagnoses are on the rise while autism itself probably isn't.
Strothy2
Thank you!
dpidcoe
Autistic people are people. Some are awesome, some are assholes. Just like every other kind of people.
ThatRandomCanadian
Can confirm. I am an asshole high-functioning autistic person.
RandomMarien
True true
chickNlittle
My 15 year old son has autism, he's incredible. Thank you for this post!
lostlegend
Is it high or low functioning?
RandomMarien
You are so welcome! <3
cptwott
same here. Not always easy....
KillMePete
*waves hands in the air* I have autism
KillMePete
*waves hands in the air* I have autism
Lornelin
(1) I was diagnosed with Asperger's /ASD in 2015, at then 35 years age. That doesn't mean I suddenly "developed autism".
popejubal
Wait, you didn't get vaccinated until this year when you turned 35?
Lornelin
(3) considered something like that until my doctor suggested a psychological evaluation after I got burnt out a second time.
Mackeroy
burnt out?
Mohawklynx
Same here man, diagnosed at 23 years old in 2016.
Radikar
Yup. As an aspergerian myself, didn't know until I was 25 when a counselor brought it up. :)
popejubal
Ooh, I like that. Aspbergian is way better than aspie.
Lornelin
(2) it just means I finally have an explanation for issues I've had my whole life. I was functioning decently enough that I never even
RandomMarien
Exactly :) I am glad you were able to get an explanation and recognize that it doesn't change who you are as a person:)
Lornelin
(4) But it explains sooo much, especially why certain things have been much harder for me than they "should" have been.
[deleted]
[deleted]
[deleted]
[deleted]
eternalposer
probably cause your comment triple posted
PumpkinMasher
What kinds of things?
Kassien
So when my son was diagnosed on the Autistic scale, I asked his doctor about this very same thing. Her response was that we have a better
turtleturner
When my brother was diagnosed in the 90s the doctor said to my mum "lower your expectations." She didn't. He has 2 university degrees now.
Molotovbliss
Good for her, it's this alone that can make or break someone on the spectrum become a contributing member of society who is self sufficient.
papasmurf1118
In the one or two things he maybe/is interested in; he may as well be Neil DeGrasse Tyson.
papasmurf1118
In the one or two things he's interested in; he may as well be NDT.
Kassien
understanding of what Autism is, and what's more included in the spectrum. Those who used to be withdrawn, quiet children, now we seeing
Kassien
as autistic. I also live in a state with very abnormal rates for autism.
PhilbertPhrog
"Abnormal" rates for autism usually correlate with wealth and focus on healthcare, which is why states like UT and AZ have higher rates.
RandomMarien
Yeah exactly. More children are being diagnosed and getting the help they need. And antivaxers are using it as this horrible negative thing
rgzdev
As an introvert, I worry that introvert kids are getting diagnosed with autism and treated in an attempt to change their personality.
PaintedSlate
The symptoms for autism are a far cry from introversion. Borderline ASD plus introversion aside, that shouldn't really happen.
magisch
what gets me most about this is that anti vaxxers think that dying of preventable diseases would be preferable to being autistic. Like 1/2
magisch
thanks that you think a condition makes me so worthless as to think that dying of preventable diseases is much better
boastfultoaster
Derwegdeswarheit
It's so accurate that it hurts
BobRossHB
Google next line is, "just because I have it doesn't make it true!!!"
KnightGalavant
JUST BECAUSE I HAVE IT DOESN'T MEAN ITS TRUE
eric8596
Ah two post with a very highly upvoted comment, congrats
TheLordofMelons
Well, vaccines do allow babies to live long enough to be diagnosed with autism soooo technically this isn't wrong.
turtleturner
Hahaha. I now know what to reply to my crazy anti vaxxer aunt.
RandomMarien
Such cringe xD
CyraxFDS
Do you squee or do you XD?
MethosX
YEAH SO CRINGY XDDDXDXDXD
Ryykur
RandomMarien
Pretty much exactly my face when people talk about vaccines causing autism xD
[deleted]
[deleted]
Jabberwookiez
¯\_(ツ)_/¯
RandomMarien
¯\_(ツ)_/¯
AwkwardKeming
Did you know that before we discovered autism there were no diagnosed cases of autism?? What did we do wrong?!?
thissitestealswhatcouldvebeenmyproductivity
Like claiming Newton discovered the laws of gravity. What makes sense about this is our having made a definition well understood.
FishPotatoWalrus
cheeseducksg
Like in the past, nobody ever died of cancer. They just died. Ever since cancer was discovered, people have been dying from it like crazy.
AwkwardKeming
On the positive side, though, deaths from evil spirits and imbalances of the humours are WAY down.
RandomMarien
Whaaaat? :o
LunaChic
It's called a joke, you'll be ok. *pats on the back reassuringly*
RandomMarien
I was being sarcastic back :P
RandomMarien
I was being sarcastic back :P
LunaChic
Your comment wasn't good at conveying that. I don't think I deserved the down vote.
RandomMarien
I didn't downvote you ¯\_(ツ)_/¯
RandomMarien
I didn't downvote you ¯\_(ツ)_/¯
implicit989
Too many people are falsely diagnosed. There is no blood test and tiny delays in development as a child can get you a false diagnosis. 1/2
implicit989
2/2 also being diagnosed can ruin your future. People have been discharged from the military once an ASD has been discovered in their past.
daffodilpuke
My sister was diagnosed with aspergers at 14 and I feel like if she hadn't been diagnosed she'd be a lot farther in life than she is now.
implicit989
Too many bad parents write off poor behavior as ASD. It gives bad parents a self gratifying excuse. "It's not me, it's my child."
implicit989
And considering that parent evaluations go into an ASD evaluation and could lead to a diagnosis... Deeply concerning.
Gustambol
Even worse, as someone in the field I've heard about parents that would go to 5-6 pediatricians before obtaining the diagnosis
implicit989
Wow. That's crazy.
Gustambol
And they would hide the previous evaluations until they got it...
Leifinator
as someone with Aspergers, we need more people like you.
Ladybug505
Agreed.
fenrir18
Autistic here too fellas :D
IWillAlwaysBeRelevant
Also someone with Aspies. My life's not been a bundle of fun but I've had a good run so far. Just goes to show even people like us are great
fluffyfishi
ASD with HFA here
Suiagg
As someone with aspergers too I don't see this enough, op is awesome.
GloriousSpaceHamster
This!
GravitationalTimeDialation
ADHD over here, not very severe though
lostlegend
Amen to that! I'm an aspie here too, and definitely pro-vaccine
Ladybug505
Agreed.
Thesinlesssinner
I'm high functioning with an autistic child of my own. We always need voices speaking up for acceptance of people on the spectrum.
cheaplowqualitygifs
Aww I'm autistic too guys!
RandomMarien
Thank you, that means so much <3
Mohawklynx
Me too! Finally got the correct identification last year!
kronoct
Same here
fenrir18
Autistic here too fellas :D
HippoplatypusRex
As someone with Asperger's, I get super excited when it's mentioned <3
[deleted]
[deleted]
HippoplatypusRex
Yeeeesss, it's great!
[deleted]
[deleted]
imnanass
hey me too!!
lostlegend
Is that rare? I never knew that! I actually went to a school for autistic kids in middle school (I left because it was horrible for (1/??
lostlegend
The high-functioning kids) but I had quite a few female friends with Aspergers. I guess that's just sampling bias though, because it WAS 2/3
lostlegend
A school for autistic kids.
NightinGem
I think it's more that Aspie girls are diagnosed less, especially considering our symptoms are slightly different than boys.
romanticcommunist
Bruh , aspergers here also
ChuckNorrisAteMySock
Hey, me too!
romanticcommunist
Autism squad over here
GloriousSpaceHamster
Me too!
TheNoblePizzaDragonWhoLivesInYourFridge
And me!
newsguycraigevans
Ditto
ThatRandomCanadian
Same here.
Molotovbliss
Yo! Son with aspergers as well. Both high functioning.